Popular Carlow Pub set up fundraiser for Carlow girl who was born with rare condition
Dicey Rileys will host a karaoke night in order to raise funds for Roxanne Kelly
Popular Carlow pub, Dicey Rileys, will be hosting a fund raiser in order to raise funds for Roxanne Kelly, a young Carlow girl who was born with a rare condition called Arthrogryposis and needs funds to get her urgent medical treatment that she needs.
The event will take place on Saturday the 17th of August, starting at 8.30pm in Diceys Rileys Carlow, located on Centaur Street, Carlow.
She also has a GoFundMe which can be found through the link HERE.
A little bit about Roxanne's story from the GoFundMe page:
“Roxanne was born with a rare condition called Arthrogryposis, which severely impacts her physical movement in all four limbs, resulting in her being unable to sit-up, stand, or feed herself. Having been on a waiting list in Ireland for over four years, we decided to seek a second opinion relating to her condition and treatments. After much research, we came across Dr Feldman MD of the Paley Orthopaedic and Spine Institute in the US,” she explained.
After an MRI scan, the results showed that the little girl has chairi 1 malformation and a large spinal arachnoid cyst with spinal cord compression.
“Dr. Feldman and the Neuro Surgeon Dr. Asadi expressed that this is an extremely urgent issue that requires immediate treatment. With this new information now available, the Irish healthcare system had overlooked these concerns. Having waited so long with little communication or help in Ireland, we have decided to go ourselves to Florida for the urgent treatment required. This was not an easy decision for our family, but this is the best outcome for Roxanne,” said Roxanne’s mum.
More information about the fundraiser can be found by following the link HERE or by following the social post below this article.