'Run for Roxanne' organised for Carlow girl who requires urgent medical care

A fun run has been set up in order to raise funds for Roxanne Kelly, a Carlow girl born with a rare condition and requires urgent medical attention.

The 'Run for Roxanne' will take place on the 15th of September, leaving from Dicey Reillys Pub in County Carlow at 11am.

Tickets can be purchased for the fun run costing €10 for an adult. More information on the event and tickets can be found through the link HERE or on eventbrite.

She also has a GoFundMe which can be found through the link HERE.

A little bit about Roxanne's story from the GoFundMe page:

“Roxanne was born with a rare condition called Arthrogryposis, which severely impacts her physical movement in all four limbs, resulting in her being unable to sit-up, stand, or feed herself. Having been on a waiting list in Ireland for over four years, we decided to seek a second opinion relating to her condition and treatments. After much research, we came across Dr Feldman MD of the Paley Orthopaedic and Spine Institute in the US,” she explained.

After an MRI scan, the results showed that the little girl has chairi 1 malformation and a large spinal arachnoid cyst with spinal cord compression.

“Dr. Feldman and the Neuro Surgeon Dr. Asadi expressed that this is an extremely urgent issue that requires immediate treatment. With this new information now available, the Irish healthcare system had overlooked these concerns. Having waited so long with little communication or help in Ireland, we have decided to go ourselves to Florida for the urgent treatment required. This was not an easy decision for our family, but this is the best outcome for Roxanne,” said Roxanne’s mum.

More information about the fundraiser can be found by following the link HERE or by following the social post below this article.