Carlow woman creates GoFundMe for young girl with severe form of epilepsy
Carlow family taking part in fundraiser to support young girl with severe form of epilepsy
Chantel from Carlow is fundraising for awareness and support towards Dravet Syndrome Ireland.
Chantel said that on the 27th of June, her and her family will be taking part in “Tie Your Lace and Play for Grace” campaign to raise awareness and vital funds for families affected by Dravet syndrome, a rare and severe form of epilepsy that begins in infancy.
“My little cousin Grace was diagnosed as a baby, and since then our family has experienced first-hand the challenges that come with this condition.
“From frequent seizures to developmental difficulties, Dravet syndrome impacts every part of daily life, not only for those diagnosed but for the families who love and care for them.
“This fundraiser means more to us than words can express. Through the incredible support and work of the Dravet Syndrome Organisation, families like ours are given hope, guidance, education, and a sense of community during the hardest moments.
Chantel said that the organisation continues to fund critical research, raise awareness, and support those navigating the realities of Dravet syndrome every single day.
By supporting “Tie Your Lace and Play for Grace,” you are helping the family honour their “brave little girl” while also making a difference for so many other families facing the same journey.
To view or contribute towards the GoFundMe, click the link here.