'Get Rare Aware': Carlow Oireachtas members warned about rare diseases

Rare Diseases Ireland (RDI) have launched their 'Get Rare Aware' campaign, which is highlighting the challenges facing people living with rare diseases in Ireland, including in Carlow.

‘Get Rare Aware’ campaigners are calling on Oireachtas members and politicians from Carlow to take action and press the government to deliver on its promise in the Programme for Government to “support the medical genetics service” by accelerating the allocation of resources to reduce the waiting list for routine genetic services.

CEO of RDI, Vicky McGrath, "we are urging Oireachtas members and politicians from Co Carlow to urgently take action. Ireland and the people living with rare diseases in Co Carlow deserve a health service that’s as good, if not better, than our international peers.”